Dfusion staffer sports ConDemo at YTH Live |
The answer: It’s complicated. I recently spent May 7 - 9 in San Francisco, at YTH Live – an annual
conference sponsored by Youth Tech Health (YTH.org) that showcases innovative ways to engage youth in
reproductive health matters via technology.
Public health advocates, global health
experts, tech innovators and policy makers moved from room to room to discuss
the question of how best to reach young people to share important information
on contraception, HIV prevention, LGBT support and stigma reduction, dating
abuse, suicide, and other sensitive topics.
This isn’t the sex ed you remember, but
that’s probably a good thing. A TIME
Parents article Why Schools Can’t Teach Sex Ed shared that nearly 80% of sexually active teens aged 15-17 had
no formal sex ed before having sex the first time. Not to say that what is communicated is any
less awkward, or less sticky. Sixteen year-old Olivia Poretta, animator and
producer of Wise on the Web, a short film about Internet safety said, “Kids really
respond to a one-to-one connection, and sharing in a positive way, not
scare-tactics.” She said she really started listening about HIV prevention when
she heard a guest speaker at school talk intimately about how he lost his boyfriend
to AIDS in the 90s. While not every teen may be as self-possessed and
emotionally mature as Olivia appeared to be, there was a general consensus
amongst the youth ambassadors at YTH Live that being talked to as a young
adult, not as a child, was the way to get their attention.
Believe it or not, bringing sex ed to the Internet
and mobile technology is not new. YTH stands for Youth Tech Health, and has
actually been around since 2001, when sex ed trailblazer Deb Levine founded
what was then called “Internet Sexuality Information Services, Inc.” During the
3-day conference, the current Executive Director of YTH, Bhupendra Sheoran,
seemed to magically appear and add profound insight to every panel I attended. His
ever-present smile and enthusiasm and cadre of young energetic employees make YTH
feel more like a start-up than a health communications firm.
Interestingly enough, many of the most
successful programs and campaigns presented at YTH Live came from global rather
than domestic efforts, although as a global public health professional this is
not news to me. While the US lags behind
in social behavior change communications (SBCC) and social marketing innovation
in nearly every sector domestically, successful global programs and projects
funded by organizations like USAID and the Bill and Melinda Gates Foundation
seem to have influenced the US’s public health communications establishment for
the better. A few potential reasons for the disparity in technical innovation:
US telecommunications laws restrict the use of mobile technology to send public
health messages to the public without consent, and HIPAA (Health Insurance Portability and
Accountability Act) compliance is essential if there is an exchange
of electronic protected health information (ePHI).
On the first day of YTH Live, we were
invited to participate in a “Human-Centered Design Challenge,” sponsored by FHi360, with expert coaching from IDEO.org. Human-centered design, or HCD, evolved from computer user
interface design, but it’s based on the simple principle that in order to make
shoes for someone, you need to take a walk with them, listen to them, and be
ready to change your preconceived notions about what kind of shoes you’ll make.
In social marketing and SBCC, it’s known as participatory research, development
and evaluation. I have my own take on the process called Change 101, using much the same
principles to produce behavior-centered programming and social change campaigns.
The Design Challenge was framed as: How might we use social media-based
platforms to support interaction with and feedback from adolescents with
respect to reproductive health and contraception?
No small feat to come up with a novel
approach in 48 hours! We quickly learned
through our rushed, highly unscientific research gained from speaking
with teens from our programs and random young souls roaming around the adjacent
mall, that they had no interest in talking about contraception via social
media. Sex yes, the awkward stuff, no. My two partners and I came up with an
idea for a Whatsapp-based “Dear Savvy Sanna” and “Amore Amante,” an app powered
by human expert and data-informed avatars who would provide advice via text and
IVR (Interactive Voice Recognition).
Well, we didn’t make the finalists. The
three teams who did were composed of energetic 20-somethings who worked all
night to come up with snazzy ideas. (Sigh. I’m not bitter at all! ;-) ) The
winning idea? A take-off on the “F*#k, Marry, or Kill” game for Snapchat. For
those of you who haven’t heard of this game, it rates potential dates as worthy
of one of these three verbs inflicted upon them. This version included
contraceptive methods as choices, and personified the user as a “Diva” of one
choice or another. For me, this begs some
questions: can human-centered design go too far? and what responsibility as
sexual and reproductive health educators do we have to recognize when form
competes with function, and may even cause harm to the user, or promote
negative norms? I digress. I’ll save that for another blog post.
Here are some of the innovative ideas,
people, platforms and projects that caught my eye at YTH Live. Some are so
fresh they are still in Beta mode.
·
Adolescents360° (A360) – A partnership
between PSI and IDEO, this initiative, still in the “inspiration” phase of
IDEO’s HCD approach, it aims to use a “more powerful approach to addressing
adolescent girls’ unmet contraceptive needs” by employing young people as
research and design partners.
·
Amaze – “More Info. Less
Weird.” Amaze is an online sex ed resource for tweens that focuses on short,
animated videos on topics like personal safety, identity and expression, and
pregnancy and reproduction. It’s a collaboration between Advocates for Youth,
Answer (Rutgers U), and Youth Tech Health.
·
Ask Tia – A virtual “Dear Abby” whose tagline is: “Your personal,
private, digital women's health assistant.” Their CEO/Co-Founder Carolyn Witte
told me they had 200 Beta-users who use the app an average of 13 times a month.
Like the name implies, she said, the avatar Tia was created to impart the
qualities of a “cool aunt” and who also has the ability to answer questions
about sex, remind you to take your birth control pill, or provide info on what
to do when (oops!) the condom broke! Although many of the answers are data sourced,
“canned answers” from a bot, others are responded to personally by the health
educator or another on Tia’s small staff. When I asked Witte how they might
respond to a sticky question like: “I am pregnant and want to get an abortion,
where can I go?” She responded, “That is a very good question, and that is the
type of thing we are working on.”
·
ConDemo – Huge nylon faux condoms developed by Dfusion to teach proper condom use, and get around many states’
rules barring the use of actual condoms in the classroom. (Ya’ think?!)
·
Check Yourself Tool – A tablet interface being tested at Seattle Children’s
Hospital that simultaneously identifies risky health behaviors and offers
personalized feedback to adolescents. I viewed it as part of a “digital poster
session” and it’s too new for public view, but developer and Berkeley Doctoral
candidate Garret
Zieve showed me the demo used in doctor’s offices. “A tablet can
be turned to avoid parents’ eyes,” he pointed out, “as confidentiality and
privacy is huge” to teens. Questions like: “How many drinks do you consume in a
week?” compared users’ answers to the entire sample, so that kids could see a
discrepancy between what was the actual norm and what they perceived it to be.
(This kind of information is great from a health communicator’s standpoint, as
it can be used to convey the message that the actual norm is more positive than
perceived.)
·
IOTAS – Stands for “It’s
Okay to Ask Someone,” and is Planned Parenthood of Western PA’s version “Dr.
Ruth,” (showing my age there) but their take teaches youth to interpret and
answer questions texted in confidentiality by their peers. The interface seems
to be in transition at the moment, as I only found dead links on Squarespace
and Tumblir. Potential partners are being sought to pilot the new and improved interface,
and can email ioatas@ppwp.org for more info. Not to be confused with (but probably you
already are) the more national texting-based platform: “In Case You’re Curious” (ICYC).
·
Jennifer Ann’s Group – Led by Drew Crecente, a dedicated father whose daughter
was murdered by a former boyfriend, this organization focuses on providing
information about how to prevent dating abuse. Crecente led a teen competition
for best digital game to address the issue most of which are available on his
website. Blogger bias here—I was so impressed by this man’s dedication to
addressing this very important issue. I hope he gets more funding to present
and distribute the content more effectively.
·
Rise Up – An Oakland-based
organization focusing on empowering girls and women through advocacy training
to promote policy change. Yeabsiva Bogale is one of the many young leaders supported by their Youth
Champions initiative and gave an impressive presentation on her pilot
“Gamification in SHRH,” which will as the name implies, teach sex ed via mobile
games to Ethiopian youth.
·
Tune Me – A sexual and
reproductive health and rights web and mobile site developed by South
Africa-based Praekelt.org for African
adolescents in Zambia, Malawi, Zimbabwe, Namibia, and Botswana. Tune Me expert
blogger content drives anonymous and confidential user-generate conversation fit
for both low- and high-end devices. Praekelt was named “One of the 10 most
innovative companies in Africa” by FastCompany magazine in 2015.